Neurofibromatosis Clinic

There are three types of Neurofibromatosis-NF1, NF2 and schwannomatosis. These disorders produce overgrowth of the nerve sheath and other neural components to produce tumors within the central and peripheral nervous system. These are all familial genetic conditions, but many cases result from a new genetic mutation with no prior family history. NF1 is the most common disorder, and can be recognized in infants and young children. This clinic includes participation by Neurology, Genetics, Neuro-oncology and Neuropsychology, and many children are also followed by Neurosurgery, Neuro-ophthalmology, Dermatology, Plastic Surgery and/or Orthopedics.

Medical care for children with NF treated in our clinic includes:

• Genetic diagnosis and counseling
• Developmental and cognitive screening and testing
• Tumor screening and treatment including optic pathway tumors and plexiform neurofibromas
• Seizures
• Headaches
• Bone health
• Bone anomalies

Contact Information

Appointments: 501-364-4000

Fax: 501-364-6077

Note: This clinic is available to your child by physician referral. Talk with your child's physician and tell him/her you would like to be referred to Arkansas Children's. Have the doctor contact the appointment center to make a referral at 501-364-4000. If your child does not have a regular physician, please call 501-364-4000 and we will be happy to recommend one in your area.